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How Patient Activate Addresses Gaps in the Current Rare Disease Patient Finding Model

In the landscape of rare diseases, traditional approaches to disease education are failing to meet the needs of patients and biopharma companies alike. While these initiatives aim to raise awareness and educate the public, they often fall short in several critical areas – particularly finding and activating eligible patients – hindering effective patient engagement and access to treatments. Let's delve into the shortcomings of the current disease education model and explore why a new approach is urgently needed.

Limited Reach and Impact

Traditional disease education programs, including awareness campaigns and online resources, often struggle to reach and engage patients with rare diseases. With small and dispersed patient populations, these initiatives often fail to effectively disseminate information and connect patients with appropriate support and resources. As a result, many patients remain unaware of available treatments and clinical trial opportunities, leading to delayed diagnoses and suboptimal care.

Inadequate Measurement Metrics

One of the key challenges in assessing the effectiveness of disease education programs is the reliance on inadequate measurement metrics. Traditional KPIs, such as website traffic, email sign-ups, and content consumption, offer limited insights, particularly in the context of rare diseases where patient populations are small. As a result, evaluating the impact of these initiatives becomes challenging, and it may be difficult to determine whether they are effectively reaching and engaging the target audience.

Overwhelmed Parents and Caregivers 

One of the significant challenges in rare diseases is that patients are often children, and their parents and caregivers are frequently overwhelmed and stretched thin. The current self-guided DSE model, where parents navigate the internet, seek out websites, sign up for email programs, and bring information to doctors, is inefficient and adds to their burden.

Difficulty in Patient Identification

Identifying and reaching patients with rare diseases is a significant challenge for pharmaceutical companies, especially during the early stages of drug development. Traditional approaches may rely on broad outreach efforts that yield low conversion rates and inefficient use of resources. This inefficiency not only hampers patient recruitment for clinical trials but also delays access to potentially life-changing treatments for those in need.

Introducing Patient Activate: A New Approach to Disease Education

In response to these challenges, there is a growing need for a new approach to disease education that prioritizes patient engagement, personalized support, and efficient patient identification. Patient Activate, developed by Ambit, represents a paradigm shift in disease education for rare diseases. By leveraging a data-driven understanding of the digital patient journey and a team of expert guides, Patient Activate ensures that patients are swiftly identified, engaged, and connected with appropriate resources and support services.


Key Features and Benefits of Patient Activate



Data-Driven Patient Journey

Patient Activate leverages a data-driven understanding of the digital patient journey to seamlessly guide patients and caregivers to an opt-in platform. Skilled Ambit Guides then navigate every step of the diagnostic journey, ensuring a smooth transition for patients.

Addressing the Challenges of Overwhelmed Parents and Caregivers

Patient Activate provides dedicated Ambit Guides who work directly with patients, parents, or caregivers to navigate the information and the diagnostic journey. These expert guides offer personalized support, answer questions, and provide guidance every step of the way. By alleviating the burden on parents and caregivers and offering direct assistance, Patient Activate ensures a smoother and more efficient healthcare journey for families affected by rare diseases.

Meaningful Outcomes Over Vanity Metrics

Patient Activate moves away from superficial metrics like website views and email sign-ups. Instead, it focuses on meaningful outcomes, such as the identification and activation of qualified, consented patients.

Strategic Patient Engagement

Patient Activate encourages active patient engagement through targeted micro-campaigns, personalized landing pages, and qualification steps. This strategic shift ensures that patients take purposeful steps toward their healthcare journey.

Compliant Information Gathering

Patient Activate's assessments gather key information compliantly, streamlining the patient qualification process and ensuring legal and regulatory compliance.

Impressive Conversion Rates

Patient Activate achieves impressive conversion rates, ensuring that patients not only activate but also take meaningful steps towards their healthcare journey.

The current disease education model for rare diseases is fundamentally flawed, failing to effectively reach, engage, and support patients in need. To address these shortcomings and improve patient outcomes, a new approach is urgently needed. Patient Activate offers a promising solution, redefining disease education by prioritizing patient-centricity, personalized support, and efficient patient identification. With Patient Activate leading the way, we can bridge the gap between patients and educational initiatives, ensuring that individuals living with rare diseases receive the support and resources they need to thrive.

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